Chapters

Music saved my life

July 19, 2023

Chapter 33: My Dream Avatar

Have you ever heard about the 5 seconds or so gap between sleeping and waking? It's the only 5 seconds of peace you'll get all day. When your life is one giant disaster, you have absolutely nothing to look forward to, and you'd really rather be dead than alive; those 5 seconds are precious.

June 16, 2023

Chapter 32: One, Two, Three, Lamborghini

I was taken for a ride in a $500,000 Lamborghini. Yes, that's right—a Lamborghini Huracàn STO, to be exact. Words cannot describe the experience. Long story short, this past winter, shortly after my hip surgery, someone I know offered to take me for a ride in it when summer came around. In the blink of an eye, I went from "probably will never happen" to "it's going to happen!"

June 5, 2023

Chapter 31: The Sound of Silence

Music is as much a part of life as language, food, air, water, and love. It's an ingredient that nourishes the soul and enriches lives. It creates environments for peace, celebration, reminiscing, creating, thriving, being happy or sad, melancholy, joy, excitement, dancing, and singing. All of these experiences matter.

June 2, 2023 • version française

Chapter 30: Un

En tant que primates, nous sommes intrinsèquement des créatures sociales qui sont censées créer des liens les unes avec les autres et créer des réseaux de personnes qui nous tiennent à cœur et qui se soucient de nous. Et en tant qu'êtres humains, la plupart d'entre nous comptent sur l'amour des relations personnelles comme une partie importante de la vie. Pensez aux centaines de milliers de chansons d'amour qui ont été écrites sur le fait de perdre, de trouver ou de chérir un partenaire. Certaines de ces chansons sont absolument déchirantes

June 2, 2023

Chapter 29: One

As primates, we are inherently social creatures that are meant to bond with each other and build networks of people we care about and that care about us. And as humans, most of us rely on loving personal relationships as an important part of life. Just think about the hundreds of thousands of love songs that have been written about losing, having, or cherishing a partner. Some of those songs are absolutely heart-wrenching.

April 23, 2023

Chapter 28: Free As a Bird in a Cage

I saw something today that really jarred me. After meeting a close friend for lunch, I decided to take a stroll and walk through the local pet shop. I must preface by saying that I condemn the practice of putting animals in cages, especially birds. My apologies in advance to anyone who has a bird in a cage, as I won't be very supportive of this inhumane practice that serves only to make the owner feel some sort of misplaced pride in keeping a creature that is meant to fly in the sky and live in the trees captive in a cage.

April 18, 2023

Chapter 27: Pop Goes My World

As I'm sure you've noticed, like Donkey in Shrek, I wear my heart out on my sleeves. The emotional impact a separation can have, especially when feelings turn around, is hard to describe. I have never felt more alone in my life than I do now. I miss my wife and my old life so much.

March 24, 2023

Chapter 26: It's a Beautiful Day - Am I a hopeless case?

Speaking of hopeless cases, I recently learned that St. Jude was the patron saint of hopeless cases. Interestingly, I attended a catholic grade school called St. Jude Elementary, and seeing how my life has turned out, I've started wondering if I am not a hopeless case. Not hopeless in an incorrigible way, but rather as it pertains to my chronic deteriorating health, which seems to have no end in sight. Several people have told me "Don't lose hope"; however, grasping at those words is not easy when you get to that hopeless place. 

February 10, 2023

Chapter 25: Sjögren’s: Hold Me, Thrill Me, Kiss Me, Kill Me

I can tell you that I would, as devastating as joint damage can be, given the opportunity to be rid of one disease, it would be Sjögren's. Although, in my case, they are intertwined. I have Secondary Sjogren's Syndrome, associated with underlying autoimmune disorders like Psoriatic Arthritis; in other words, they come as a package.

February 5, 2023

Chapter 24: Psoriasis is not a disease. Really?

Psoriasis is a real autoimmune disease and can be as innocuous as just a patch or two of red dry, flaky skin on any random part of the body or as devastating as to cover 90% of the body with large or small scaly, red patches of skin that flake and constantly split - even the scalp can be completely covered as was the case for me when I was in high school. Some people even develop infections because the patches split and bleed, opening them up to bacteria. Millions of people, including many celebrities, namely Cyndi Lauper and golfer Phil Mickelson, have Psoriasis and or Psoriatic Arthritis, as I do.


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